SusanApkonMD

PubMed

• The Early Care (0-3 Years) In Duchenne Muscular Dystrophy Meeting Report.
  Scharf, R. J., Niki Armstrong, Susan Apkon, Kiera N Berggren, Catherine Braun, Emma Ciafaloni, Anne Connolly, Annie Kennedy, Nancy Kuntz, Katherine Mathews, Michelle M...> ;Journal of Neuromuscular Diseases. 2024 Jan 1
• 2 citations
  Quantitative measures of motor development in Angelman syndrome.
  Jessica Duis, Austin Skinner, Robert Carson, Arnaud Gouelle, Melanie Annoussamy, Jill L Silverman, Susan Apkon, Laurent Servais, James Carollo> ;American Journal of Medical Genetics. Part A. 2023 Jul 1
• Respiratory outcomes in children with congenital myotonic dystrophy.
  Jaclyn Omura, Maida Chen, Miriam J. Haviland, Susan D. Apkon> ;Journal of Pediatric Rehabilitation Medicine. 2021 Nov 14
• 5 citations
  Meta-analyses of deflazacort versus prednisone/prednisolone in patients with nonsense mutation Duchenne muscular dystrophy.
  Perry B. Shieh, Gary Elfring, Panayiota Trifillis, Claudio Santos, Stuart W. Peltz, Julie A. Parsons, Susan D. Apkon, Basil T. Darras, Craig Campbell, Craig M. McDonal...> ;Journal of Comparative Effectiveness Research. 2021 Oct 25
• 3 citations
  Steroid switching in dystrophinopathy treatment: a US chart review of patient characteristics and clinical outcomes.
  Jessica R. Marden, Claudio Santos, Brian Pfister, Richard Able, Henry Lane, Michael Somma, Jing Zhao, James Signorovitch, Julie Parsons, Susan D. Apkon> ;Journal of Comparative Effectiveness Research. 2021 Jul 19
• 6 citations
  Reliability and construct validity of the Duchenne Video Assessment.
  Marielle G Contesse, Amber T L Sapp, Susan D. Apkon, Linda Lowes, Laura Dalle Pazze, Mindy G. Leffler> ;Muscle & Nerve. 2021 Aug 1
• 3 citations
  Feasibility and Acceptability of a Telephone-Based Intervention for Hispanic Children to Promote Treatment Adherence After Traumatic Brain Injury: A Pilot Study.
  Nathalia Jimenez, Molly Fuentes, Alyssa Virtue, Laura Alonso-Gonzalez, Edgar Lopez, Chuan Zhou, Deborah Crawley, Susan D. Apkon, Brian Duncan Johnston, Frederick P. Ri...> ;The Journal of Head Trauma Rehabilitation. 2021 Feb 22
• 5 citations
  Children With Disabilities Must Be More Than an Afterthought in School Reopening.
  Maurice G Sholas, Susan D. Apkon, Amy J. Houtrow> ;JAMA Pediatrics. 2021 Apr 1
• 15 citations
  Transforaminal intrathecal delivery of nusinersen for older children and adults with spinal muscular atrophy and complex spinal anatomy: an analysis of 200 consecutive...
  John J Weaver, Danial K. Hallam, Jeffrey Forris Beecham Chick, Sandeep Vaidya, David S. Shin, Niranjana Natarajan, Nassim Rad, Kevin S. H. Koo, Giridhar M. Shivaram, A...> ;Journal of Neurointerventional Surgery. 2021 Jan 1
• 4 citations
  Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019.
  Susan D. Apkon, Kathi Kinnett, Linda H. Cripe, Dongsheng Duan, Jamie L. Jackson, Joe N. Kornegay, May Ling Mah, Stanley F. Nelson, Vamshi Rao, Mena Scavina, Brenda L. ...> ;Journal of Neuromuscular Diseases. 2021 Jan 1
• 46 citations
  The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic.
  Aravindhan Veerapandiyan, Kathryn R. Wagner, Susan D. Apkon, Craig M. McDonald, Katherine D. Mathews, Julie A. Parsons, Brenda L. Wong, Katy Eichinger, Perry B. Shieh,...> ;Muscle & Nerve. 2020 Jul 1
• 9 citations
  Pediatric neuromuscular disorders: Care considerations during the COVID-19 pandemic.
  Anne Troike Stratton, Richard Ogden Roberts, Oren Kupfer, Terri Carry, Julie A. Parsons, Susan D. Apkon> ;Journal of Pediatric Rehabilitation Medicine. 2020 Jan 1
• 16 citations
  School reopening during COVID-19 pandemic: Considering students with disabilities
  Joline E. Brandenburg, Lainie K Holman, Susan D. Apkon, Amy J. Houtrow, Robert Rinaldi, Maurice G Sholas> ;Journal of Pediatric Rehabilitation Medicine. 2020 Jan 1
• 1 citations
  Restoration of Walking After Surgical Management of Equinus in a Non-ambulatory Child With Duchenne Muscular Dystrophy: A Case Presentation.
  Maryse Bouchard, Leslie F. Vogel, Susan D. Apkon> ;PM & R. 2019 Nov 1
• 18 citations
  Orthopedic and Surgical Management of the Patient With Duchenne Muscular Dystrophy
  Susan D. Apkon, Ben Alman, David J. Birnkrant, Robert D. Fitch, Robert K. Lark, William G. Mackenzie, Norbert J. Weidner, Michael D. Sussman> ;Pediatrics. 2018 Oct 1
• 6 citations
  Primary Care and Emergency Department Management of the Patient With Duchenne Muscular Dystrophy.
  Garey Noritz, James Naprawa, Susan D. Apkon, Kathi Kinnett, Fabrizio Racca, Elizabeth Vroom, David J. Birnkrant> ;Pediatrics. 2018 Oct 1
• 34 citations
  Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy.
  Laura E. Case, Susan D. Apkon, Michelle Eagle, Ann Gulyas, Laura Juel, Dennis J. Matthews, Robbin A. Newton, Helen F. Posselt> ;Pediatrics. 2018 Oct 1
• 1 citations
  The primary care pediatrician: key to improving neuromotor outcomes.
  Susan D. Apkon, Garey Noritz> ;Developmental Medicine and Child Neurology. 2018 Sep 1
• 212 citations
  Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan.
  David J. Birnkrant, Katharine Bushby, Carla M. Bann, Susan D. Apkon, Angela Blackwell, Mary K. Colvin, Linda H. Cripe, Adrienne R. Herron, Annie Kennedy, Kathi Kinnett...> ;The Lancet. Neurology. 2018 May 1
• 511 citations
  Diagnosis and management of Duchenne muscular dystrophy, part 2: respiratory, cardiac, bone health, and orthopaedic management
  David J. Birnkrant, Katharine Bushby, Carla M. Bann, Benjamin A. Alman, Susan D. Apkon, Angela Blackwell, Laura E. Case, Linda H. Cripe, Stasia Hadjiyannakis, Aaron K ...> ;The Lancet. Neurology. 2018 Apr 1
• 590 citations
  Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and neuromuscular, rehabilitation, endocrine, and gastrointestinal and nutritional management
  David J. Birnkrant, Katharine Bushby, Carla M. Bann, Susan D. Apkon, Angela Blackwell, David Brumbaugh, Laura E. Case, Paula R. Clemens, Stasia Hadjiyannakis, Shree Pa...> ;The Lancet. Neurology. 2018 Mar 1
• 44 citations
  Transforaminal intrathecal delivery of nusinersen using cone-beam computed tomography for children with spinal muscular atrophy and extensive surgical instrumentation:...
  John J Weaver, Niranjana Natarajan, Dennis W. W. Shaw, Susan D. Apkon, Kevin S. H. Koo, Giri Shivaram, Eric J. Monroe> ;Pediatric Radiology. 2018 Mar 1
• 289 citations
  Ataluren in patients with nonsense mutation Duchenne muscular dystrophy (ACT DMD): a multicentre, randomised, double-blind, placebo-controlled, phase 3 trial
  Craig M. McDonald, Craig Campbell, Ricardo Erazo Torricelli, Richard S. Finkel, Kevin M. Flanigan, Nathalie Goemans, Peter Heydemann, Anna Kamińska, Janbernd Kirschner...> ;Lancet. 2017 Sep 23
• 15 citations
  Auditing Access to Outpatient Rehabilitation Services for Children With Traumatic Brain Injury and Public Insurance in Washington State
  Molly Fuentes, Leah L. Thompson, D. Alex Quistberg, Wren Haaland, Karin V. Rhodes, Deborah Kartin, Cheryl I. Kerfeld, Susan D. Apkon, Ali Rowhani-Rahbar, Frederick P. ...> ;Archives of Physical Medicine and Rehabilitation. 2017 Sep 1
• 31 citations
  Patient-centered benefit–risk assessment in duchenne muscular dystrophy
  Ilene L. Hollin, Holly L. Peay, Susan D. Apkon, John F.P. Bridges> ;Muscle & Nerve. 2017 May 1
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