NienkePrinsDosaMD

PubMed

• Addressing social determinants of health through customization: Quality improvement, telemedicine, and care coordination to serve immigrant families.
  Castillo, H., Locastro, M., Malhotra, A., Morales, R., Timmons, K., Castillo, J., Fremion, E., Jarosz, S., Dosa, N.> ;Journal of Pediatric Rehabilitation Medicine. 2023 Jan 1
• Spina Bifida Global Learning Collaborative: Educating the next generation of clinicians, researchers, and advocates.
  Dosa, N., Ahmed, Y., Alriksson-Schmidt, A., Castillo, H., Contepomi, S., Locastro, M., Koning, J., Koutsouras, G., Kutwa, E., Mahorta, A., MacFarland, S., Öhrvall, A.,...> ;Journal of Pediatric Rehabilitation Medicine. 2023 Jan 1
• 1 citations
  Weight Status of Children Participating in the National Spina Bifida Patient Registry.
  Michele Polfuss, Tiebin Liu, Kathryn Smith, Pamela S Murphy, Elisabeth Ward, Judy Thibadeau, Nienke P Dosa, Yinding Wang, Kathleen J Sawin> ;Pediatrics. 2022 Dec 1
• It Takes a Village: Building Community With Assistive Technology.
  Mary M Locastro, Jason Robinson, Erin Robinson, Nienke P Dosa> ;Pediatrics. 2022 Aug 1
• 14 citations
  Clustered mutations in the GRIK2 kainate receptor subunit gene underlie diverse neurodevelopmental disorders.
  Jacob R Stolz, Kendall M Foote, Hermine E Veenstra-Knol, Rolph Pfundt, Sanne W Ten Broeke, Nicole de Leeuw, Laura Roht, Sander Pajusalu, Reelika Part, Ionella Rebane, ...> ;American Journal of Human Genetics. 2021 Sep 2
• 39 citations
  Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association
  Brad E. Dicianno, Patricia Beierwaltes, Nienke P. Dosa, Lisa Raman, Jerome Chelliah, Sara Struwe, Juanita Panlener, Timothy J. Brei> ;Disability and Health Journal. 2020 Apr 1
• 3 citations
  Preface to the special issue for the guidelines for the care of people with spina bifida.
  Brad E. Dicianno, Nienke P. Dosa, Patricia Beierwaltes> ;Journal of Pediatric Rehabilitation Medicine. 2020 Jan 1
• 20 citations
  Spina bifida transition to adult healthcare guidelines.
  Ellen Fremion, Nienke P. Dosa> ;Journal of Pediatric Rehabilitation Medicine. 2019 Jan 1
• 1 citations
  Central and peripheral dysmyelination in a 3-year-old girl with ring chromosome 18.
  Dawn Brianna Lammert, David Miedema, Josiree Ochotorena, Nienke P. Dosa, Kalliopi Petropoulou, Roger Robert Lebel, Ai Sakonju> ;Clinical Case Reports. 2019 Sep 27
• 17 citations
  Genetic epidemiology of neural tube defects
  Philip J. Lupo, A. J. Agopian, Heidi Castillo, Jonathan Castillo, Gerald H. Clayton, Nienke P. Dosa, Betsy Hopson, David B. Joseph, Brandon G. Rocque, William O. Walke...> ;Journal of Pediatric Rehabilitation Medicine. 2017 Dec 11
• 20 citations
  Research Needs for Effective Transition in Lifelong Care of Congenital Genitourinary Conditions: A Workshop Sponsored by the National Institute of Diabetes and Digesti...
  Michael H. Hsieh, Hadley M. Wood, Brad E. Dicianno, Nienke P. Dosa, Veronica Gomez-Lobo, Tej K. Mattoo, Rosalia Misseri, Jenna M. Norton, Kathleen J. Sawin, Peter B Sc...> ;Urology. 2017 Feb 2
• 17 citations
  Life course health and healthcare utilization among adults with spina bifida.
  Gregory S. Liptak, Laura M. Robinson, Philip W. Davidson, Adam C. Dziorny, Rebecca Lavalley, Mary Grace Flaherty, Nienke P. Dosa> ;Developmental Medicine and Child Neurology. 2016 Jul 1
• 24 citations
  Population pharmacokinetics of oral baclofen in pediatric patients with cerebral palsy.
  Yang He, Janice E. Brunstrom-Hernandez, Liu Lin Thio, Shellie Lackey, Deborah Gaebler-Spira, Maxine M. Kuroda, Elaine E. Stashinko, Alexander H. Hoon, Jilda Vargus-Ada...> ;The Journal of Pediatrics. 2014 May 1
• 17 citations
  Family satisfaction, pain, and quality-of-life in emerging adults with spina bifida: a longitudinal analysis.
  Melissa H. Bellin, Brad E. Dicianno, Philip Osteen, Nienke P. Dosa, Elizabeth M. Aparicio, Patricia Braun, T. Andrew Zabel> ;American Journal of Physical Medicine & Rehabilitation. 2013 Aug 1
• 28 citations
  Spina bifida grown up.
  Gregory S. Liptak, Kimberlee Garver, Nienke P. Dosa> ;Journal of Developmental and Behavioral Pediatrics. 2013 Apr 1
• 18 citations
  Self-Management, Satisfaction With Family Functioning, and the Course of Psychological Symptoms in Emerging Adults With Spina Bifida
  Melissa H. Bellin, Nienke Dosa, T. Andrew Zabel, Elizabeth M. Aparicio, Brad E. Dicianno, Philip Osteen> ;Journal of Pediatric Psychology. 2013 Jan 1
• 59 citations
  Social participation in a nationally representative sample of older youth and young adults with autism.
  Gregory S. Liptak, Jenny A. Kennedy, Nienke P. Dosa> ;Journal of Developmental and Behavioral Pediatrics. 2011 May 1
• 28 citations
  Interrelationships of sex, level of lesion, and transition outcomes among young adults with myelomeningocele.
  Melissa H. Bellin, Brad E. Dicianno, Eric Levey, Nienke P. Dosa, Gayle Roux, Kim Marben, T. Andrew Zabel> ;Developmental Medicine and Child Neurology. 2011 Jul 1
• 38 citations
  Youth with Spina Bifida and Transitions: Health and Social Participation in a Nationally Represented Sample
  Gregory S. Liptak, Jenny A. Kennedy, Nienke P. Dosa> ;The Journal of Pediatrics. 2010 Oct 1
• 87 citations
  Obesity across the lifespan among persons with spina bifida
  Nienke P. Dosa, John T. Foley, Michael Eckrich, Denise Woodall-Ruff, Gregory S. Liptak> ;Disability and Rehabilitation. 2009 Jul 21
• 34 citations
  Incidence, prevalence, and characteristics of fractures in children, adolescents, and adults with spina bifida.
  Nienke P. Dosa, Michael F. Eckrich, Danielle A. Katz, Margaret A. Turk, Gregory S. Liptak> ;The Journal of Spinal Cord Medicine. 2007 Jan 1
• 15 citations
  Mother knows best: medical record management for patients with spina bifida during the transition from pediatric to adult care.
  Carsten Østerlund, Nienke P. Dosa, Catherine Arnott Smith> ;AMIA ... Annual Symposium Proceedings. AMIA Symposium. 2005 Jan 1
• 29 citations
  Improving guideline adherence for the diagnosis of ADHD in an ambulatory pediatric setting.
  Brad G. Olson, Paula F. Rosenbaum, Nienke P. Dosa, Nancy J. Roizen> ;Ambulatory Pediatrics. 2005 May 1
• 3 citations
  An opportunity for school nurses and pediatricians to collaborate.
  Nienke P. Dosa, Deb Ilardi> ;School Nurse News. 2003 Nov 1
• 1 citations
  PICUBASICS: an on-line resource for the diagnosis and management of acute illness in children with chronic conditions and disabilities
  Nienke P. Dosa, Lynn Cole, Robert K. Kanter, Gregory S. Liptak> ;Physical Medicine and Rehabilitation Clinics of North America. 2002 Nov 1
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